Chronic Illness Chronicles - Kate

For me, living with a chronic illness feels like I’m walking a very fine tightrope. Having Lupus, POTS (postural orthostatic tachycardia syndrome), EDS (ehlers danlos syndrome and MCAD (mast cell activation disorder) can be a lot to cope with.

Losing my ESA dog, Rylie

I had to recently put down my emotional support dog Rylie and have been heartbroken ever since. Living with chronic illnesses and invisible illnesses has been beyond difficult but she always gave me comfort.

lifeKateJuly 22, 2018rescue dog, best friend, lupus, loss, chronic illness, POTS, Lupus, Mast Cell, invisible illness, chronic, chronically fatigued, chronically sick, two being healthy, lupus awareness, spoonie, Spoonie warriorComment

Europe Trip: Instagram vs. Reality

Travel with a chronic illness is very difficult. Instagram may not always showcase this fact, but we wanted to show how hard it can be to deal with chronic fatigue, pain and symptoms while not at home.

Traveling with invisible illnesses

We had been planning a trip to Europe for the better part of a year with the destinations being Scoland, Paris, and Belgium. See how we balance traveling with chronic conditions such as Lupus, POTS (postural orthostatic tachycardia syndrome) ehlers danlos syndrome, and Mast Cell while being abroad.

lifeKateJune 9, 2018Traveling, travel, traveling with chronic illness, chronic migraines, chronic, chronic illness, chronically fatigued, chronic fatigue, fatigue, jet lag, eiffel tower, paris, france, belgium, scotland, highlands, travel blog, travel bloggers, missed flight, travel itinerary, travel bug, sisters who travel, sisters, lupus awareness, Lupus, pots, potsie, spoonie, Spoonie warrior, spoonie life, EDS, ehlers danlos syndrome, mast cell, MCAD, anthropologie, madewell, Rag & Bone, fibromyalgia, dysautonomia, autoimmune problems, Autoimmune, anxiety, notre dame, cheese, Galeries Lafayette, cheese plate, flight, airplane, traveling, travel post, highland, oban, mull, iona, glasgow, Edinburgh, medieval castle, bothwell, castle, chocolates, belgium chocolates, manchester, medical, disability, invisible illness, you don't look sick, sick, stronger together, patisserie, highland coo, highland cow, nature, sunset, glen coe, sky fall, H & M, Illness, joint pain, muscle pain, two being healthy, eds, postural orthostatic tachycardia syndrome, lupusComment

preparing to travel with medical conditions

One thing that always gives us a bit of anxiety is traveling with a chronic illness. Laying in your own bed at home, surrounded by all your comforting items, whatever they may be, and not feeling well is hard enough.

Life